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Due to the increasing number of VIRUSES being sent to me, my email address will no longer be available.  If you have specific questions about your situation, please join the email support group for families of children with plagio at
http://groups.yahoo.com/
group/
Plagiocephaly/join
Thank you for your understanding!
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The place to be to find anything and everything on the web about Positional Plagiocephaly!

If you know of a link that could be added to this list, please email me!  Thanx!

Plagiocephaly.org  Information on the assessment and correction of abnormal head shape, plagiocephaly.

www.plagiocephaly.org

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Plagiocephaly Yahoo! Group  A wealth of information collected by over 850 members.  Check the Bookmarks, Polls, Photo Files, and Database for excellent "real life" information.  Also, post your questions and get answers almost immediately.


Click the purple button

http://groups.yahoo.com/group/Plagiocephaly
Type PLAGIOCEPHALY into the search box to find us!

Cranial Technologies  Inventers of the DOC Band, the first FDA approved cranial orthosis.  Check their Information page for many research links.  *Note* Most information on the DOC Band can be found at the Cranial Technologies web site.  Most are PDF files, so I can't link you to them.  If you don't have Abobe Acrobat Reader, you can download it from the Information Center at Cranial Tech. for free.  Check it out.  It's well worth the trip!

www.cranialtech.com

Cranial Technologies On Line Brochure

www.cranialtech.com/infocenter/brochure.htm

Orthomerica  Providers of the second FDA approved cranial orthosis.

www.orthomerica.com

Need help in Europe?
E-mail Dr. Pinyot: info@plagiocefalia.com
http://www.plagiocefalia.com
Phone 0034656314014 He does clinics Barcelona and Madrid.

Need help in the UK?

www.cranialtech.co.uk

Need help in Australia & Area?
Adelaide:

Dr. David J. David
ddavid@ddms.com.au
Phone: 61-8-8267-1466

Sydney:

Sydney Children's Hospital
Barker Street
RANDWICK    2130
Phone: 02-9382-1544

 
New Zealand:

Dr. Tristan De Chalain
Phone: 09-522-0652

*PLEASE NOTE THAT I DO NOT HAVE ANY PERSONAL EXPERIENCE WITH ANY OF THESE DOCTORS/CENTERS.  I AM SIMPLY PROVIDING POSSIBLE LEADS TO HELP*


Positional Plagiocephaly vs. Craniosynostosis  Here are a couple of articles that point out the main difference between Plagio & Cranio.

pediatrics.medscape.com/AANS/NF/2000/v09.n03/nf0903.04.john/nf0903.04.john-01.html   When you click for this article, it will ask for a username and password.  Click CANCEL to get your username.  This article is a good one, and worth looking at.

www.pedisurg.com/PtEduc/Abnormal_Head_Shape.htm   TX Pediatric Surgical Association.  Detailed diagrams of cranial sutures, etc.

http://pedns.wustl.edu/cranioclinic.htm  St. Louis Children's hospital, Washington University School of Medicine Pediatric Neurosurgery.  Discussing Craniosynostosis and Positional Plagiocephaly.

American Academy of Pediatrics   Wondering what the AAP has to say about all of this?  Look no further.

http://www.aap.org/policy/re9946.html   The AAP suggests that back sleeping may contribute to head flattening, and recommends supervised TUMMY TIME.

Diagnosis and Treatment

www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9024443&form=6&db=m&Dopt=b   Pub Med's abstract of a study done on the diagnosis and treatment of Plagio.

www.neurosurgery.org/journals/online_j/feb97/2-2-3.html  What is the natural history of the misshapen neonatal head?

www.csmc.edu/pediatrics/refguide/cranio/cranio05.html   Correction of Non-synostotic Plagiocephaly

www.neurosurgery.org/focus/feb97/2-2-NSF-TOC.html   Neurology Journal - Plagiocephaly Management

www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=10690081&dopt=Abstract  offers preventative and treatment interventions, and reviews treatment options.

Infant delays (plagio related??)/What if we don't treat?

www.neurosurgery.org/journals/online_j/feb97/2-2-3.html   Good article that compares corrective devices with positional therapy.

www.kidsource.com/kidsource/content4/growth.chart/page1.html   Guidelines of when to talk to physician or speech language pathologist.

www.kidsource.com/ASHA/early_identification.html   Early Identification of Speech-Language Delays and Disorders

www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=9118137&dopt=Abstract  Lambdoid stenosis (posterior plagiocephaly) and craniofacial asymmetry: long-term outcomes.
Abstract, but article can be ordered. May be useful for appeals

www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=8891373&dopt=Abstract  Mandibular dysmorphology in unicoronal synostosis and plagiocephaly without synostosis.
just the abstract - but the whole article can be ordered

www.kidsource.com/ASHA/articulation.html   Q & A about Articulation Problems.  Describes articulation development with milestones.

www.kidsource.com/ASHA/otitis.html   Questions and Answers about Otitis Media, Hearing, and Language Development.  Ear infections and how they may effect hearing or speech/language development.

www.kidsource.com/kidsource/content4/speech.develop.baby.pn.html   Speech Development in the Infant and Toddler.  Includes milestones in speech development

www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=10654986&form=6&db=m&Dopt=b   U of Washington, Seattle Developmental Study.  An abstract linking plagiocephaly w/ grade school problems.

Cranial Sacral Therapies  Some who have chosen not to move forward with helmet therapies try CST.

bregman.org/_disc1/000000eb.htm   Cranial Osteopathy or Craniosacral Therapy.  An article plus more links.

www.pn-magazine.com/pn/xxxxxxx/9811touc/default.htm   The Right Touch?

http://upledger.com/   The Upledger Institute, Inc.  Craniosacral Therapy Information.

TMJ or Tempomandibular Joint  a condition possibly linked to plagio

www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=8891373&form=6&db=m&Dopt=b  Offers a tentative link between jaw problems and untreated plagiocephaly

www.drkoop.com/nancy/tmj.html   A little bit of Info. about TMJ.

Torticollis  also known as "wry neck".  A tight neck muscle, causing the head to tilt one way, and/or restrict head rotation.

http://pages.ivillage.com/torticolliskids/torticolliskids/   Torticolliskids homepage.  Great tort. information, and a link to the torticolliskids email support group.

www.eurekalert.org/releases/csmc-spt070999.html   Dr Graham exposes back to sleep, tort/plagio & treatment

www.csmc.edu/pediatrics/refguide/helmet/helmet.html   Cedar Sinai Plagiocephaly/Torticollis Newsletter. Great information!

http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=10342615&form=6&db=m&Dopt=b  Sternocleidomastoid imbalance versus congenital muscular torticollis: their relationship to positional plagiocephaly.

http://www.orthoseek.com/articles/congenmt.html   congenital muscular torticollis.  What it is and drawings of exercises for left and right sided cases.

http://www.entnet.org/pressroom/movement.html  Mayo Clinic info on torticollis and stats on tort and it's relation to plagio.

Saving you Money!!  (U.S. Residents)

www.irs.gov/prod/forms_pubs/pubs/p502toc.htm   IRS Publication 502: MEDICAL AND DENTAL TAX DEDUCTIONS!!!  This is the "official" IRS Pub. 502 site that goes into what can be deducted: TRAVEL, Uncovered/unreimbursed medical expenses: MUST READ FOR ALL!

www.npaf.org/appeals/index.htm   Patient Advocate Foundation
May help fight your insurance appeals 1-800-532-5274

www.aircareall.org   Public benefit flying for health care, patient transport, and other missions of public service.  You may qualify for free flights!

Some Basic Information

www.mcg.edu/som/surgery/neuros/plagio.htm   Med College of Georgia re: positional plagiocephaly

www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=8657530&dopt=Abstract  Observations on a recent increase in plagiocephaly without synostosis:
Abstract, but the article can be ordered

http://www.childrens.com/faxnotes/99nov22.htm  Children's medical center of Dallas FAX NOTES


On Line News & Media Articles

babyparenting.about.com/parenting/babyparenting/library/weekly/aa080900a.htm   Back Sleeping Linked to Misshapen Heads

www.jsonline.com/lifestyle/parenting/mar01/tummy031801.asp  Emphasizing the importance of tummy time.  Touches on Plagio. & Tort.

http://webmd.lycos.com/content/article/1728.61518  LYCOS webMD Medical News

www.office.com/global/0,2724,61-19446,FF.html  Health Care Practitioners Address Infantile Plagiocephaly

www.mhhs.org/news_events/healingmagazine/spring99/art06.htm  Healing Online, Lea's fancy headband

www.thetelegram.com/topstories/lifestyles/lifestyles_story.asp?id=44068&ln=le  The Telegram:  A special helmet for a little charmer

www.danecountykids.com/issues/11-0105/11-0105-plagiocephaly.html Misshapen heads resulting from newborns sleeping on their backs

 

More links coming soon!

 

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This information is not meant to replace your child's physician's input.

Views expressed in the Plagiocephaly Parents Support website are not necessarily the views of the Plagiocephaly Discussion Group or the webmaster of Plagiocephaly.Info.